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The scattered lights and ghosts by Hiqma Humaidan

23/10/2025

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A large tree in the middle of green woodland. Large white text reads: The Scattered Lights and Ghosts. Smaller text reads: Discussing disability in fairy tales and folklore.
A large tree in the middle of green woodland. Large white text reads: The Scattered Lights and Ghosts. Smaller text reads: Discussing disability in fairy tales and folklore.
I wasn’t a teenager
The optician said it wasn’t grease either 
Within months I heard voices that sounded similar 
Each day they got friendlier
I felt humiliated I couldn’t see their faces 
They looked like ghosts and light was scattered through my utah 
I felt saddened that in the night the stars were not clear and appeared to be more far 
My mum held me tight and told me I was her strong 25 year old 
Drs said it was the rarest eye disease they ever saw and my story was just about to unfold 
I began to go from poised to quite the clutz 
At least the elderly had jokes about the reflux 
Or pretty much my bad dancing on broadway street 
The sun was once my best friend but there was a time I dreaded the heat 
My eyes watered and the light scattered more into I threw myself into oblivion 
Then I met a brave Palestinian 
He told me not to give up that the eye disease I had was keratoconus and my cornea was wearing thin 
I cried as I once again stumbled and hit my shin
The Palestinian urged me to get a life changing surgery called collagen cross linking 
I heard crickets as I stared at his ghostly figures thinking I saw a short beard through my excessive blinking
My right eye was too far gone and  I was laughed at as I developed astigmatism and everyone laughed at me 
None the less I was numb for hours and then  screaming baby 
Mum took care of me 
Assuring I got salty drops into my eyes 4x a day 
I couldn’t see with my right eye so I kind of felt helpless at this point in my life and I just listened to soothing audio and lay and lay
My eye healed and she asked if I could still see ghosts or scattering
To my surprise the ghosts were gone and I saw the scattering was less on the lights so we got back to knattering
We had great conversations and eventually I took care of mum through her sickness until she passed away and finally met a great surgeon 
She was Indian 
She moved the entire muscle in my eye the scattered lights is still there and ghosts but not the astigmatism unfortunately nothing could relieve the scar 
There are things I want to do like drive, but I might not be able to because contacts feel like you’re wearing foreign objects and getting infections 
I wish your sight could be restored with injections 
Like they do flu jabs and other such nonsense 
None the less it’s a horrific disease but it never stopped me smiling but why be miserable I have my other eye it makes sense 
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